Michael Ferrari - Childhood Disability and Family Systems

ROUTLEDGE LIBRARY EDITIONS: CHILDREN AND DISABILITY

Volume 5

CHILDHOOD DISABILITY AND FAMILY SYSTEMS

CHILDHOOD DISABILITY AND FAMILY SYSTEMS

Edited by

MICHAEL FERRARI AND
MARVIN B. SUSSMAN

First published in 1987 by The Haworth Press, Inc.

This edition first published in 2016

by Routledge

2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN

and by Routledge

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Routledge is an imprint of the Taylor & Francis Group, an informa business

1987 The Haworth Press, Inc.

All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers.

Trademark notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe.

British Library Cataloguing in Publication Data

A catalogue record for this book is available from the British Library

ISBN: 978-1-138-96230-9 (Set)

ISBN: 978-1-315-64761-6 (Set) (ebk)

ISBN: 978-1-138-10155-5 (Volume 5) (hbk)

ISBN: 978-1-315-64953-5 (Volume 5) (ebk)

Publishers Note

The publisher has gone to great lengths to ensure the quality of this reprint but points out that some imperfections in the original copies may be apparent.

Disclaimer

The publisher has made every effort to trace copyright holders and would welcome correspondence from those they have been unable to trace.

The publishers would like to make it clear that the views and opinions expressed, and language used in the book are the authors own and a reflection of the times in which it was published. No offence is intended in this edition.

Childhood Disability and Family Systems

Edited by
Michael Ferrari and Marvin B. Sussman

Childhood Disability and Family Systems has also been published as Marriage & Family Review, Volume 11, Numbers 1/2 1987.

1987 by The Haworth Press, Inc. All rights reserved. No part of this book may be reproduced or utilized in any form or by any means, electronic or mechanical, including photocopying, microfilm and recording, or by any information storage and retrieval system without permission in writing from the publisher. Printed in the United States of America.

The Haworth Press, Inc., 12 West 32 Street, New York, NY 10001

EUROSPAN/Haworth, 3 Henrietta Street, London WC2E 8LU England

Library of Congress Cataloging-in-Publication Data

Childhood disability and family systems.

Has also been published as Marriage & family review, volume 11, numbers 1/2, 1987T.p. verso.

Includes bibliographies and index.

1. Handicapped children United States Family relationships. 2. Family social work United States. 3. Handicapped children United States. I. Ferrari, Michael. II. Sussman, Marvin B. [DNLM: 1. Abnormalities rehabilitation. 2. Child Development Disorders rehabilitation. 3. Child Exceptional. 4. Family. 5. Handicapped psychology. 6. Parent-Child Relations.

W1 MA68Cv.11 no. 1/2/WS 105.5.H2 C536]

HV888.5.C46 1987 362.4088054 87-11839

ISBN 0-86656-671-6

Childhood Disability and Family Systems

Marriage & Family Review
Volume 11, Numbers 1/2

CONTENTS

Inez Marie Fitzgerald

Joseph Newman

Rosalyn Benjamin Darling

John H. Noble, Jr.

Rob Palkovitz
Christopher B. Wolfe

Sandra L. Harris

Dene G. Klinzing
Dennis R. Klinzing

Michael T. Yura

James E. Lindemann
Sally J. Lindemann

Anne E. Kazak

Penny L. Deiner

Martha W. Krauss
Janet Z. Giele

Kris Jeter

Rosalyn Benjamin Darling, Early Intervention Services, City-County Clinic, Johnstown, Pennsylvania

Penny L. Deiner, Department of Individual and Family Studies, University of Delaware, Newark, Delaware

Michael Ferrari, Department of Individual and Family Studies, and Department of Psychology, University of Delaware, Newark, Delaware

Inez Marie Fitzgerald, Information Utilization Program, United States Department of Education, National Institute of Handicapped Research, Washington, DC

Janet Z. Giele, Heller School, Brandeis University, Waltham, Massachusetts

Sandra L. Harris, Graduate School of Applied and Professional Psychology, Rutgers University, Piscataway, New Jersey

Kris Jeter, Director, Programs and Communication, The Possible Society

Anne E. Kazak, Department of Psychology, Temple University, Philadelphia, Pennsylvania

Dene G. Klinzing, Department of Individual and Family Studies, University of Delaware, Newark, Delaware

Dennis R. Klinzing, Speech Communication and Theatre, West Chester University, West Chester, Pennsylvania

Martha W. Krauss, Heller School, Brandeis University, Waltham, Massachusetts

James E. Lindemann, Crippled Childrens Division, Oregon Health Sciences University, Portland, Oregon

Sally J. Lindemann, School District #1, Portland, Oregon

Joseph Newman, School of Education, University of Pittsburgh, Pittsburgh, Pennsylvania

John H. Noble, Jr., School of Social Work, SUNY at Buffalo, Buffalo, New York

Rob Palkovitz, Department of Individual and Family Studies, University of Delaware, Newark, Delaware

Marvin B. Sussman, Unidel Professor of Human Behavior, College of Human Resources, University of Delaware, Newark, Delaware

Christopher B. Wolfe, Attorney in Private Practice, Newark, Delaware

Michael T. Yura, Department of Counseling Psychology, West Virginia University, Morgantown, West Virginia

While there are some exceptions, most of us have grown up in the context of something that we would refer to as our family. That family may have been large by some measure, extended by some other, or it may have been orchestrated by primarily one parent or two. Regardless of its size or form, however, an individuals family is usually the major learning environment, marker of identity, and interpersonal forum for the early years of childhood, and often remains a major influence well into adolescence, early adulthood, and beyond.

Scientists of human behavior have for many years made families the object of great study. With little regard to the familys basic structure of functional kinship networks, most approaches to family investigation have, however, often divided the family up into one-on-one relationships and investigated each independently. Certainly a vast proportion of the literature on the mother-child relationship has accrued almost in disregard that other relationships in the family may have an interactive effect upon this dyad. However, this situation is changing. In recent years, lead by some of the pioneers of family systems thinking, there has been a growing trend to study the behavior and the intricate levels of meaning derived in the family more broadly. The instantiation of this trend has been hallmarked by emphases increasingly placed on various events both intra-and extra-familial that can exert an influence on family relationships, structure, and function. It is with this broad based framework of thinking that the present book on childhood disability and family systems was conceived.