Marie Sépulchre - Disability and Citizenship Studies

Focusing on the case of disability, this book examines what happens when previously marginalised individuals obtain the legal recognition of their equal citizenship rights but cannot fully enjoy these rights because of structural inequality.

Bringing together disability and citizenship studies, it explores an original conceptualisation of disability as a distinct social division and approaches citizenship as a developing institution. In addition to providing innovative theoretical perspectives on citizenship and disability, this book is grounded in the empirical analysis of the claims of disability activists in Sweden. Drawing on a wide range of blog posts and debate articles, it sheds light upon the inequality and domination faced by disabled people in Sweden and underlines the disability activists proactive ideas and solutions for constructing a more equal citizenship.

This book will be of interest to scholars, activists, and policymakers in the fields of disability, citizenship, social inequality, human rights, politics, activism, social welfare and sociology.

Marie Spulchre is a SYLFF (Sasakawa Young Leaders Fellowship Fund) postdoctoral fellow at the Department of Sociology at Uppsala University, Sweden, and a visiting fellow at the Strathclyde Centre for Disability Research at the University of Glasgow, UK.

Series editor: Mark Sherry

The University of Toledo, USA

Disability studies has made great strides in exploring power and the body. This series extends the interdisciplinary dialogue between disability studies and other fields by asking how disability studies can influence a particular field. It will show how a deep engagement with disability studies changes our understanding of the following fields: sociology, literary studies, gender studies, bioethics, social work, law, education, or history. This ground- breaking series identifies both the practical and theoretical implications of such an interdisciplinary dialogue and challenges people in disability studies as well as other disciplinary fields to critically reflect on their professional praxis in terms of theory, practice, and methods.

Critical Disability Studies and the Disabled Child

Unsettling Distinctions

Harriet Cooper

Disability, Globalization and Human Rights

Edited by Hisayo Katsui and Shuaib Chalklen

Reimagining Disablist and Ableist Violence as Abjection

Ryan Thorneycroft

Identity Construction and Illness Narratives in Persons with Disabilities

Chalotte Glintborg and Manuel de la Mata

Disability and Citizenship Studies

Marie Spulchre

Women with Disabilities as Agents of Peace, Change and Rights

Experiences from Sri Lanka

Edited by Karen Soldatic and Dinesha Samararatne

For a full list of titles in this series, please visit: www.routledge.com/series/ASHSER1401

Disability and Citizenship
Studies

Marie Spulchre

First published 2021

by Routledge

2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN

and by Routledge

52 Vanderbilt Avenue, New York, NY 10017

Routledge is an imprint of the Taylor & Francis Group, an informa business

2021 Marie Spulchre

The right of Marie Spulchre to be identified as author of this work has been asserted by her in accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988.

All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers.

Trademark notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe.

A catalogue record for this book is available from the British Library

Names: Sepulchre, Marie, author.

Title: Disability and citizenship studies / Marie Sepulchre.

Description: Abingdon, Oxon ; New York, NY : Routledge, 2021. |

Series: Interdisciplinary disability studies | Includes bibliographical references and index.

Identifiers: LCCN 2020014322 (print) | LCCN 2020014323 (ebook) |

ISBN 9780367467265 (hardback) | ISBN 9781003030676 (ebook)

Subjects: LCSH: People with disabilitiesCivil rightsSwedenCase studies. | CitizenshipSwedenCase studies. | Discrimination against people with disabilitiesSwedenCase studies. | Social stratification SwedenCase studies. | Sociology of disabilitySwedenCase studies.

Classification: LCC HV1559.S9 S47 2021 (print) | LCC HV1559.S9 (ebook) | DDC 323.3/709485dc23

LC record available at https://lccn.loc.gov/2020014322

LC ebook record available at https://lccn.loc.gov/2020014323

ISBN: 978-0-367-46726-5 (hbk)

ISBN: 978-1-003-03067-6 (ebk)

by MPS Limited, Dehradun

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This book is based on my doctoral thesis and therefore owes a lot to many people I met during my time as a PhD student. I thank Sandra Torres and Rafael Lindqvist who were my supervisors at the Department of Sociology of Uppsala University (UU). Sandra, thank you for showing me possibilities (thanks for dropping the idea of publishing my thesis as a book!) and for encouraging me to find my own way to be an academic. Rafael, thank you for showing enthusiasm for my (sometimes a little crazy) ideas and for always telling me that its going to be alright.

My interest in the concept of citizenship was sparked by my participation in the EU-funded research project DISCIT Making persons with disabilities full citizens, coordinated by Bjrn Hvinden (Oslo Metropolitan University, Norway) and Rune Halvorsen (Oslo Metropolitan University, Norway). Special thanks go to my co-authors in that project: Rafael Lindqvist (UU), Victoria Schuller (University of Lucerne, Switzerland), Jennifer Kline (National University of Ireland, Galway, Ireland), Anna M. Kittelsaa (Norwegian University of Science and Technology, Norway) and Kjetil Klette Bhler (Oslo Metropolitan University, Norway). Being involved in DISCIT was a great opportunity to study disability in a European context and meet colleagues from nine different countries. Many thanks to Roy Sainsbury for inviting me to stay at the Social Policy Research Unit (SPRU) at the University of York, UK. While at the University of York, I also very much enjoyed exchanging ideas with Edmund Coleman-Fountain, Nick Ellison and Gemma Crous. Thank you very much!

Another invitation connected to DISCIT was a short visit to the University of Cologne, Germany. Thank you Anne Waldschmidt for inviting me to present my research at the International Research Unit Disability Studies (IDIS). I much appreciated our engaging conversations about disability and citizenship, which led to our joint article Citizenship: Reflections on a Relevant but Ambivalent Concept for Persons with Disabilities, published in Disability and Society.

In Sweden, my research benefited a great deal from the Welfare Research Group at the Department of Sociology (UU). Thanks to all the research group members for your helpful comments on various drafts. I am also grateful to have had the opportunity to present my work at several seminars organised by the Swedish Network on Disability Research and at the Health Education Seminar (Stockholm University). Moreover, I want to thank the members of the Swedish Critical Disability Studies Network (Kritfunk) for your support and stimulating discussions.