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Marco Tofani (editor) - Measuring Spinal Cord Injury : A Practical Guide of Outcome Measures

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Marco Tofani (editor) Measuring Spinal Cord Injury : A Practical Guide of Outcome Measures

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Book cover of Measuring Spinal Cord Injury Editors Giovanni Galeoto Anna - photo 1
Book cover of Measuring Spinal Cord Injury
Editors
Giovanni Galeoto , Anna Berardi , Marco Tofani and Maria Auxiliadora Marquez
Measuring Spinal Cord Injury
A Practical Guide of Outcome Measures
1st ed. 2021
Logo of the publisher Editors Giovanni Galeoto Department of Human - photo 2
Logo of the publisher
Editors
Giovanni Galeoto
Department of Human Neurosciences, Sapienza University of Rome, Rome, Italy
Anna Berardi
Department of Human Neurosciences, Sapienza University of Rome, Rome, Italy
Marco Tofani
Department of Neurorehabilitation and Robotics, Bambino Ges Paediatric Hospital, Rome, Italy
Maria Auxiliadora Marquez
Universidad Fernando Pessoa-Canarias, Las Palmas, Spain
ISBN 978-3-030-68381-8 e-ISBN 978-3-030-68382-5
https://doi.org/10.1007/978-3-030-68382-5
The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2021
This work is subject to copyright. All rights are solely and exclusively licensed by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed.
The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use.
The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, expressed or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

This Springer imprint is published by the registered company Springer Nature Switzerland AG

The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland

Contents
Giorgio Scivoletto , Giovanni Galeoto , Marco Tofani , Anna Berardi and Maria Auxiliadora Marquez
Marco Monticone , Giovanni Galeoto , Anna Berardi and Marco Tofani
Giovanni Galeoto , Marco Tofani , Giulia Grieco , Marina DAngelo and Anna Berardi
Anna Berardi , Marco Tofani , Filippo Camerota , Claudia Celletti , Giovanni Fabbrini and Giovanni Galeoto
Maria Auxiliadora Marquez , Jeronimo Gonzlez-Bernal , Giulia Grieco , Marina DAngelo , Antonella Conte and Francescaroberta Panuccio
Anna Berardi , Marina DAngelo , Francescaroberta Panuccio , Giulia Grieco and Giovanni Galeoto
Francescaroberta Panuccio , Giulia Grieco , Marina DAngelo and Maria Auxiliadora Marquez
Francescaroberta Panuccio , Marina DAngelo , Giulia Grieco and Marco Tofani
Giulia Grieco , Francescaroberta Panuccio , Marina DAngelo and Maria Auxiliadora Marquez
Anna Berardi , Giulia Grieco , Francescaroberta Panuccio , Marina DAngelo , Maria Auxiliadora Marquez and Marco Tofani
Giulia Grieco , Francescaroberta Panuccio , Marina DAngelo , Annamaria Servadio and Giovanni Galeoto
Donatella Valente , Maurizio Sabbadini , Enrico Castelli and Marco Tofani
Marina DAngelo , Giulia Grieco , Francescaroberta Panuccio and Anna Berardi
Donatella Valente , Azzurra Massimi , Giulia Grieco , Francescaroberta Panuccio , Marina DAngelo , Julita Sansoni and Giovanni Galeoto
Giovanni Galeoto , Maria Auxiliadora Marquez , Marco Tofani and Anna Berardi
The Author(s), under exclusive license to Springer Nature Switzerland AG 2021
G. Galeoto et al. (eds.) Measuring Spinal Cord Injury https://doi.org/10.1007/978-3-030-68382-5_1
Introduction on Measuring Spinal Cord Injury
Giorgio Scivoletto
(1)
Foundation Santa Lucia, Rome, Italy
(2)
Department of Human Neurosciences, Sapienza University of Rome, Rome, Italy
(3)
Department of Neurorehabilitation and Robotics, Bambino Ges Paediatric Hospital, Rome, Italy
(4)
Universidad Fernando Pessoa-Canarias, Las Palmas, Spain
Marco Tofani
Email:
Keywords
Measuring Spinal cord injury Outcome measures Psychometric properties Systematic review
Introduction

Every year, around the world, between 250,000 and 500,000 people suffer a spinal cord injury (SCI). There is no reliable estimate of global prevalence, but the estimated annual global incidence is 4080 cases per million. Traffic accidents were typically the most common cause of SCI, followed by falls in the elderly population [].

Living with an SCI requires strategies to face a wide range of health-related problems. Apart from the paralysis, problems in various body functions, such as the bladder, bowel and sexual function, autonomic function, and pain, will be of concern. Functional problems can lead to limitations in activities and participation restrictions typically related to mobility, self-care activities, difficulties in regaining work, maintaining social relationships, participating in leisure activities, and being active members of the community [].

The research group aims to develop a systematic review to identify all the evaluation tools developed and validated to measure different aspects of SCI. This study aims to provide clinicians and researchers information regarding the existing outcome measures to assess people with SCI based on reviewing, analyzing, comparing, and critically appraising the available outcome measures and their distribution in the international literature.

Spinal Cord and International Classification of Functioning Disability and Health

The International Classification of Functioning, Disability, and Health (ICF) []. According to ICF, many people living with SCI face different body function problems and structure domains according to lesion levels and according to early post-acute or long-term settings. These differences also appear in the activity and participation domains. New efforts to understand differences within people living with SCI, according to the ICF framework, were made.

Table ]. The formal consensus process integrating evidence from preparatory studies and expert knowledge at the ICF Core Set conference for SCI led to the definition of a Comprehensive ICF Core Set for SCI in the early post-acute context for multidisciplinary assessment and clinical studies.
Table 1

ICF core set for acute SCI adapted and modified from Kirchberger et al. []

Body functions

b730

Muscle power functions

b620

Urination functions

b525

Defecation functions

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