Jennifer Graf Groneberg - Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome
Here you can read online Jennifer Graf Groneberg - Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome full text of the book (entire story) in english for free. Download pdf and epub, get meaning, cover and reviews about this ebook. year: 2008, publisher: Penguin Publishing Group, genre: Home and family. Description of the work, (preface) as well as reviews are available. Best literature library LitArk.com created for fans of good reading and offers a wide selection of genres:
Romance novel
Science fiction
Adventure
Detective
Science
History
Home and family
Prose
Art
Politics
Computer
Non-fiction
Religion
Business
Children
Humor
Choose a favorite category and find really read worthwhile books. Enjoy immersion in the world of imagination, feel the emotions of the characters or learn something new for yourself, make an fascinating discovery.
- Book:Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome
- Author:
- Publisher:Penguin Publishing Group
- Genre:
- Year:2008
- Rating:5 / 5
- Favourites:Add to favourites
- Your mark:
Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome: summary, description and annotation
We offer to read an annotation, description, summary or preface (depends on what the author of the book "Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome" wrote himself). If you haven't found the necessary information about the book — write in the comments, we will try to find it.
An exceptional memoir that provides emotional insight and practical advice.
Its like planning a trip to Italy, only to get off the plane and discover youre actually in Holland. You need a new road map, and fast...
When Jennifer Groneberg and her husband learned theyd be having twin boys, their main concern was whether theyd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.
Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.
Its like planning a trip to Italy, only to get off the plane and discover youre actually in Holland. You need a new road map, and fast...
When Jennifer Groneberg and her husband learned theyd be having twin boys, their main concern was whether theyd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.
Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.
Jennifer Graf Groneberg: author's other books
Who wrote Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome? Find out the surname, the name of the author of the book and a list of all author's works by series.
Jennifer Graf Groneberg
Jennifer Potter
Jennifer N. Smith
Jennifer Jackson
Patricia Romanowski Bashe
Jennifer Rothschild
OToole Jennifer Cook
Jennifer L. Holland
Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome — read online for free the complete book (whole text) full work
Below is the text of the book, divided by pages. System saving the place of the last page read, allows you to conveniently read the book "Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome" online for free, without having to search again every time where you left off. Put a bookmark, and you can go to the page where you finished reading at any time.
Light
Font size:
↓
↑
Reset
Interval:
↓
↑
Bookmark:
Make
Table of Contents
Praise for ROAD MAP TO HOLLAND
Rich with honesty, wisdom, and a deep appreciation for everyday miracles, Road Map to Holland is a thoughtful, moving meditation on the struggles and joys Jennifer Graf Groneberg and her family experienced during her son Averys first two years. Groneberg offers a wealth of insight, information, and even practical resources for families whose children have Down syndrome. Yet this book is first and foremost a story about the constant discovery of love, and it will resonate with every reader who has traveled the always unpredictable, often overwhelming, wonder-filled journey into parenthood.
Kim Edwards, author of The Memory Keepers Daughter
What a remarkable book! With excruciating candor and exquisite generosity, Jennifer Graf Groneberg invites us into the deepest privacy of her innermost thoughts, feelings, fears, challenges, and triumphs. Nothing is left out in this amazingly intimate and profound journal. She allows us into every nook and cranny of her life, and we find ourselves firmly ensconced in her heart.
Emily Perl Kingsley, national spokesperson and advocate for
people with disabilities and author of Welcome to Holland
people with disabilities and author of Welcome to Holland
This is the story of Averya child with Down syndrome who transformed his mothers broken heart into one filled with cheer, awe, and pride. He offers all new and expectant parents a powerful perspective on lifes greatest lessons.
Brian Skotko, M.D., M.P.P., Childrens Hospital Boston
and Boston Medical Center
and Boston Medical Center
Bursting with hope, Gronebergs account of mothering Avery highlights the triumph of love over fear. Its candid, vivid prose and poignant emotion make the story difficult to put down and impossible to forget. Herein lies truth to be pondered and savored by every mother, every woman, every human being.
Kathryn Lynard Soper, editor of Gifts: Mothers Reflect on
How Children with Down Syndrome Enrich Their Lives
How Children with Down Syndrome Enrich Their Lives
I have been to Holland for eighteen years now, and this book brought back so many thoughts and feelings I had saved up that I felt an immediate sisterhood with Jennifer. I watched her deal with that same fear of the unknown that singed my heart, and I wept when she reached that crucial moment when she found that same place of self-forgiveness. No matter who or where you are in relation to a child with Down syndrome, these pages will be like signposts along your road, to give hope and a new way of seeing things. Its good to be able to see the potholes coming and be ready for them, and its good to know when to pull over and take the time to enjoy the breathtaking views that only happen on this road. Thank goodness for road maps!
Martha Sears, coauthor of The Baby Book: Everything You
Need to Know About Your Baby from Birth to Age Two and
author of 25 Things Every New Mother Should Know
Need to Know About Your Baby from Birth to Age Two and
author of 25 Things Every New Mother Should Know
For our children
Acknowledgments
Theres an adage that it takes a village to raise a childIm tempted to say the same is true for writing a book, but in my case, its more like a small metropolis. My helpers came from far and wide, and in naming them all, I realize my only claim to this book is that I brought the words. Many others contributed essentials, including:
My mom, Christine Graf, who saved everything I ever wrote, some of it in picture frames. My dad and his wife, Fred and Pam Graf, who encouraged me to dream big dreams. Don and Joyce Groneberg: Id have married Tom just to become part of his family. Bob and Elizabeth Groneberg, and Denys and Glynnis Slater, aunts and uncles to my children. My grandparents, June and John Vincent, and my writing fairy godmothers, Laurie Buehler and Sara Esgate.
Laura Nolan, for the pleasure of a thirty-year friendship and for finding exactly the right home for my words, and my editor, Tracy Bernstein, who is gentle, kind, wise, and firm. Shes the kind of mother youd want for your children, and she shared her talents as a second mother to this book.
Whenever I lost my way, Claudia Cunningham reassured me by saying, Tell them what you saw. Thats all you have to do. Phyllis Walker wrapped my first draft in a pink-and-blue ribbon; shes the midwife of this story. And Sarah Smith, who introduces me as my friend, the author. Thank you for believing it.
Emily River, bearer of many gifts, including, at the finish line, a lobster dinner flown in from the East Coast. Nicole Tavenner took beautiful photographs of my family. Judith Bromley told me, You have to write this book. I will help you, then proceeded to feed me encouragement, pasta in red sauce, and coffee brownies, as needed.
And the Wildhorse Writers GroupJudith, Claudia, Phyllis, and Gary Acevedo, Cindy Doll, Mary Gertson, JoAnne Hines, Jackie Ladner, Milana Marsenich, Angela Nolan, Maggie Plummer, Julie Wenneryou brought kindness and suggested revisions in perfect measure.
Others, too: Vicki Forman, Kathy Soper, Sue Robins, Rebecca Phong, Jennifer Enderlin. Mary Cross and Mary Ann McGowan. Wendy Sitter, Molly Beck, Brittney Bennetts. Youve blessed me with your friendship and support.
Kristin Darguzas at ParentDish gave me a place to tell my Avery stories; Amy Anderson and Sheri Reed welcomed me to mamazine.com with open arms. BabyCenter.com, Downsyn. com, T21 Online, and Uno Mas!all groups of extraordinary people whove created places where everyone is welcome and no one ever has to explain.
And finally, Tom, who believed I could do it, and Carter, Avery, and Bennett, who show me how every day.
Sundays child is full of grace.
At First, It Hurts to Breathe
Its hard to know where to begin.
It might start five days after the end of my second pregnancy. I am in the Neonatal Intensive Care Unit (NICU) with my mother-in-law, Joyce, and we have just finished holding the babies. In the ten seconds that follow, my life changes so completely and thoroughly that for a while I am unable to speak.
Our pediatrician is Dr. Rosquist, a woman my age who, under other circumstances, might have been a friend. Lean and light, fair-skinned, with almost white hair, she reminds me of lemon sherbet. When Ive returned Avery to his isolette, tucked Bennett back into his green-and-yellow knit cap, and handed him to his nurse to be weighed, she comes over to us. She sits down next to me, reaches out, and touches my forearm. I know that whatever she has to tell me is going to be bad.
But I should begin earlier. It would have been a busy morning in the NICU, as that is when Dr. Rosquist, first name Jennifer, like mine, makes her rounds. The room would have been noisy, filled with the hum of the HVAC, the clicking of the fluorescent lights overhead, the near-constant beeping of the pulse-oxygen monitors, an occasional alarm, but in my mind it is stillall the sound quieting to the small, irregular breathing of my son Avery as she examines him. Stethoscope to the palm of her hand to warm it, hands inside the isolette touching him, stethoscope on his heart. Is it the shape of his head that catches her eye, or ears placed slightly too low, or a particular crease in the palm of his left hand? On the clipboard at the base of his isolette, she writes a note to herself, a reminder to order a blood draw to be sent away to Shodair Childrens Hospital for a test.
Earlier still, theres the moment the babies are pulled out of me seven weeks premature. An emergency C-section performed by a doctor I dont know, in a hospital seventy-five miles from home. Eyes peering over blue surgical masks, the members of my team, who assembled at a moments notice on a bright, sunny Sunday in June. The nurse who talks me through the procedure is gentle; the soft blue of her scrubs reminds me of the Pacific Ocean, which I knew as a girl. The babies come quickly; pulled out by a man I call Doc Hollywood after his long thick hair, his tan, his Hawaiian scrubs, which are novelties where I live, a small mountain town in northwest Montana. He is confident and extraordinarily kind. He holds up the first baby, Baby A, our Avery, and says, What a beautiful boy. Congratulations. Then comes his twin, Baby B, Bennett. Another healthy boy. Way to go, Mom. The cries of newborns fill the room, the hearty sounds of my new sons.
Light
Font size:
↓
↑
Reset
Interval:
↓
↑
Bookmark:
Make
Similar books «Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome»
Look at similar books to Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome. We have selected literature similar in name and meaning in the hope of providing readers with more options to find new, interesting, not yet read works.
Jennifer Potter
Jennifer N. Smith
Jennifer Jackson
Patricia Romanowski Bashe
Jennifer Rothschild
OToole Jennifer Cook
Jennifer L. Holland
Reviews about «Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome»
Discussion, reviews of the book Road Map to Holland: How I Found My Way Through My Sons First Two Years with Down Syndrome and just readers' own opinions. Leave your comments, write what you think about the work, its meaning or the main characters. Specify what exactly you liked and what you didn't like, and why you think so.