Praise for
Autism Spectrum Disorder
This well-documented guide offers clear answers to difficult questions and recommends the important resources that parents will find the most useful. Shes done the research so the reader doesnt have to! Her abundance of practical knowledge has been compiled into this user-friendly updated edition that both parents and professionals will want to keep on hand to refer to time and time again. Truly a must-have!
Ricki G. Robinson, MD, MPH, member of the Scientific Review Panel of Autism Speaks; medical director of Profectum; and author of Autism Solutions
A clearly written, well-organized, carefully documented compilation of important information and useful advice. It will provide invaluable help and guidance to parents and professionals alike, especially those who are new to the world of autism. This book is not merely highly recommendedit is indispensable.
Bernard Rimland, PhD, past director of the Autism Research Institute, founder of the Autism Society of America, and past editor of Autism Research Review
This is an essential source of information and advice in plain everyday language that can help anyone who is affected by autism today, from the parent of a newly diagnosed child, to someone who has been in the trenches for years. Kudos to Chantal for providing us with this long overdue, user-friendly, how-to guide for dealing with autism.
Portia Iversen, cofounder of Cure Autism Now Foundation (CAN), member of Innovative Technology for Autism Advisory Board of Autism Speaks, and author of Strange Son
The essential book that parents, health professionals, and a wide readership will reach for in order to fathom this confounding condition.
Douglas Kennedy, author of Leaving the World, The Moment, and The Pursuit of Happiness
If I could recommend just one book to families and professionals, this is it! In Autism Spectrum Disorder, Chantal Sicile-Kira shares her immense knowledge, personal experience, and insightful advice for families affected by autism. She guides readers along the journey from diagnosis through adulthood, including an extensive compilation of resources and food for thought throughout. This isnt a book that youll read once and place on a shelf; its an invaluable resource that you will continue to refer to for years to come.
Wendy Fournier, founding board member and president of the National Autism Association
Autism Spectrum Disorder is a tremendous resource for families caring for children and adults with autism. While sharing her personal experiences of a parent of a child with autism, Chantal Sicile-Kira provides insights and resources that are often missing from many of the books on this topic. Quite simply Autism Spectrum Disorder simplifies many of the complications that families face in navigating systems of care, and in doing so, she gives families hope and great inspiration.
Areva D. Martin, Esq., cofounder and president of Special Needs Network Inc.
For more than thirty years I have treated visual developmental delays for those with ASD; I think I have made a difference. But my contributions pale in comparison to what Jeremy has taught me through his work in Vision Therapy, and what Chantal has taught me as a mother and author. This book will become a lifelong companion for those who want to make a difference in a lifea life with autism or not.
Carl G. Hillier, OD, FCOVD, clinical director of San Diego Center for Vision Care
A PERIGEE BOOK
Published by the Penguin Group
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Copyright 2014 by Chantal Sicile-Kira
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Revised Perigee trade paperback ISBN: 978-0-399-16663-1
eBook ISBN: 978-0-698-14906-9
The Library of Congress has cataloged the first Perigee edition as follows:
Sicile-Kira, Chantal.
Autism spectrum disorders : the complete guide to understanding autism, Aspergers syndrome, pervasive developmental disorder, and other ASDs / Chantal Sicile-Kira.1st Perigee pbk. ed.
p. cm.
ISBN 0-399-53047-9
1. AutismPopular works 2. Autism in childrenPopular works. 3. Aspergers syndromePopular works. 4. Developmental disabilitiesPopular works. I. Title.
RC553.A88S566 2004
616.85'882dc22 2004052935
PUBLISHING HISTORY
Perigee trade paperback edition / September 2004
Revised Perigee trade paperback edition / January 2014
Neither the publisher nor the author is engaged in rendering professional advice or services to the individual reader. The ideas, procedures, and suggestions contained in this book are not intended as a substitute for consulting with your physician. All matters regarding your health require medical supervision. Neither the author nor the publisher shall be liable or responsible for any loss or damage allegedly arising from any information or suggestion in this book.
While the author has made every effort to provide accurate telephone numbers, Internet addresses, and other contact information at the time of publication, neither the publisher nor the author assumes any responsibility for errors, or for changes that occur after publication. Further, the publisher does not have any control over and does not assume any responsibility for author or third-party websites or their content.
Version_1
For Jeremy, Rebecca, and Daniel, the stars of my universe.
I know of nobody who is purely autistic or purely neurotypical. Even God had some autistic moments, which is why the planets all spin.
Jerry Newport, Your Life Is Not a Label
The history of mans progress is a chronicle of authority refuted.
Author unknown
CONTENTS
ACKNOWLEDGMENTS
MANY people have contributed in different ways to this book. Im forever grateful to Bernard Rimland, PhD, and Temple Grandin, PhD, for their generosity of time and knowledge. Both Dr. Rimland and Dr. Grandin have, in different ways, shifted the paradigm in how the world looks at autism and how we can best help our children, whether they are toddlers, teenagers, or young adults. (Bernie passed away in November of 2006 and this was a great loss to all of us in the autism community.)
Thanks to all those on the spectrum who have shared their experiences. They are the real experts on autism. Im grateful to the many parents and educators that Ive met at conferences around the country; Im continually learning from other peoples experiences and knowledge base. Thanks to the many parent-driven organizations and professionals providing much-needed supports to families, and the researchers who continue to try to solve the mystery of autism and how to best help our children to reach their full potential.