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Ross Douthat - The Deep Places: A Memoir of Illness and Discovery

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Ross Douthat The Deep Places: A Memoir of Illness and Discovery
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The Deep Places: A Memoir of Illness and Discovery: summary, description and annotation

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NEW YORK TIMES EDITORS CHOICE In this vulnerable, insightful memoir, the New York Times columnist tells the story of his five-year struggle with a disease that officially doesnt exist, exploring the limits of modern medicine, the stories that we unexpectedly fall into, and the secrets that only suffering reveals.
A powerful memoir about our fragile hopes in the face of chronic illness.Kate Bowler, bestselling author of Everything Happens for a Reason
In the summer of 2015, Ross Douthat was moving his family, with two young daughters and a pregnant wife, from Washington, D.C., to a sprawling farmhouse in a picturesque Connecticut town when he acquired a mysterious and devastating sickness. It left him sleepless, crippled, wracked with paina shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which according to CDC definitions does not actually exist: the chronic form of Lyme disease, a hotly contested condition that devastates the lives of tens of thousands of people but has no official recognitionand no medically approved cure.
From a rural dream house that now felt like a prison, Douthats search for help takes him off the map of official medicine, into territory where cranks and conspiracies abound and patients are forced to take control of their own treatment and experiment on themselves. Slowly, against his instincts and assumptions, he realizes that many of the cranks and weirdos are right, that many supposed hypochondriacs are victims of an indifferent medical establishment, and that all kinds of unexpected experiences and revelations lurk beneath the surface of normal existence, in the places underneath.
The Deep Places is a story about what happens when you are terribly sick and realize that even the doctors who are willing to treat you can only do so much. Along the way, Douthat describes his struggle back toward health with wit and candor, portraying sickness as the most terrible of gifts. It teaches you to appreciate the grace of ordinary life by taking that life away from you. It reveals the deep strangeness of the world, the possibility that the reasonable people might be wrong, and the necessity of figuring out things for yourself. And it proves, day by dreadful day, that you are stronger than you ever imagined, and that even in the depths there is always hope.

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Copyright 2021 by Ross Douthat All rights reserved Published in the United - photo 1
Copyright 2021 by Ross Douthat All rights reserved Published in the United - photo 2

Copyright 2021 by Ross Douthat

All rights reserved.

Published in the United States by Convergent Books, an imprint of Random House, a division of Penguin Random House LLC, New York.

Convergent Books is a registered trademark and its C colophon is a trademark of Penguin Random House LLC.

Library of Congress Cataloging-in-Publication Data

Names: Douthat, Ross Gregory, author.

Title: The deep places / Ross Douthat.

Description: New York : Convergent, [2021]

Identifiers: LCCN 2021024033 (print) | LCCN 2021024034 (ebook) | ISBN 9780593237366 (hardcover) | ISBN 9780593237373 (ebook)

Subjects: LCSH: Douthat, Ross GregoryHealth. | Lyme diseasePatientsUnited StatesBiography. | Chronically illUnited StatesBiography. | JournalistsUnited StatesBiography.

Classification: LCC RC155.5 .D68 2021 (print) | LCC RC155.5 (ebook) | DDC 616.9/2460092 [B]dc23

LC record available at https://lccn.loc.gov/2021024033

LC ebook record available at https://lccn.loc.gov/2021024034

Ebook ISBN9780593237373

crownpublishing.com

Illustration by iStock/Nosyrevy

Cover design: Pete Garceau

Cover photograph: Mikhail Pletnev / Getty Images

ep_prh_5.8.0_c0_r0

Contents

Maybe somebody has to explore what happens

when one of us wanders over near the edge

and falls for awhile. Maybe it was your turn.

William Stafford, Afterwards

Preface

For a long time I would always wake up early. Some mornings there would be a moment when I was conscious but not yet fully aware of my body, just a mind floating lightly in the dark. But then very quickly I would feel the weight of things, my legs and chest on the mattress, my head heavy on the pillow. And then quickly too, the pain would be with me once again.

The first sensation was always something differenta heavy ache in the shoulder Id been sleeping on, a pan-fry sizzle on my hips, a throbbing at the very front of my skull, an intolerable vibration inside my ankles. Then it spread and varied as I pushed back the blanket and fumbled for my phone, shoving my mind into the glowing screen while my body shuttled through its symptoms.

Sometimes I would lie in a cramped position scrolling Twitter, picking up fragments of news, chasing threads of arguments from overnight, letting the pain work through my limbs and joints, watching the clock slowly creep toward 5 a.m. That was on a good morning. On the bad ones, I would be forced up quickly, staggering to the bathroom, leaving Abby to sleepI hopedin a snow fort of blankets on the far side of the bed.

The house was old, so very old, but the bathroom was newan expanse of tile, a shower like a grotto, a his-and-hers sink with drawers for both of us below a sweep of mirror. The floor was even supposed to be heated in the winter, but the system had been on the fritz since we moved in, and the wall panel flickered in the half-light with a gibberish of broken digits.

I moved around the room like an acolyte tending to different altarsnow planted on the toilet or hunched over it, now leaning heavily on the glass door of the shower, now standing at the sink staring at my haggard, puffy face. I opened the drawer beneath and fished out a bottle of pillsone bottle among many, filling compartments meant for combs and soap and razorsand swallowed one, two, a handful. After a while they would hit home, and I would shimmy my legs, flail my arms, stretch my face muscles into a silent Munchian scream. Except when the pain was deep, layers down inside my chest, and there was nothing to do but sit with it on the cold, unheated floor.

The light would come up gradually, the clock on my phone creeping on toward six. Eventually I would leave the bathroom, sometimes wrung out and exhausted enough to fade back into a twenty-minute sleep, but sometimes still aching and burningin which case I would pad through the master bedroom, past my blanketed wife, out onto the landing at the junction of the houses long T-shape.

Through one door our daughters lay asleep, in two identical white beds in a room whose floor sloped downward toward the corner where the foundation had settled, long New England years ago. Through another our infant son stirred in his crib. The hall stretched away down the length of the T, and I followed it, the floor creaking a little, to what had once been a servants bedroom, sealed away with its own bathroom near a back stairway to the kitchen.

The extra bedroom was supposed to be an office, a place to write away from the noise of kids and the babble of the social life we imagined hosting. I did do a lot of my writing there, on a drop-leaf desk with books stacked around it and a lamp propped up above. But the main thing inside the desk was a further supply of bottles, squat and round for pills and slim for tinctures, stamped with leaves and berries, mosaics and inscriptions, Chinese characters, a dragon chasing his own tail. And beneath the drop-leaf I now stored a box, a black console with buttons in red and green and white and blue, with a tangle of red and black cords running out from it, and metal tubes where the cords ended, just the right size to be gripped in an adult human hand.

On either side of the desk were windows, old colonial frames with slightly mottled glass, looking out and down, offering a view of the landscape in the soft gray morning light. Just below was a wide flagstone patio, with a little lawn pasted in between a white garage and stone steps leading leftward toward a pool. Then the lawn reached a picket fence, beyond which the ground fell away in levelsfirst a spill of boulders, then an overgrown path, then another drop to a field that went red and brown all winter but came back green with spring. I could see tall grass and cattails rising from a damp low-lying patch, before the pasture climbed to a granite knoll and a single ash tree, a sentinel of the woods that waited just beyond.

The light spread and the landscape brightened, putting on its taunting beauty once again.

I bent to the desk, gripped the metal tubes, and turned on the machine.

1.
A Dark Wood
I always wanted to move back to New England My wife and I both grew up in - photo 3

I always wanted to move back to New England.

My wife and I both grew up in Connecticut: Abby in a green town just far enough from New York to count as the country, me in the rust and brick and Gothic of New Haven. My mothers family were Maine Yankees from Puritan stock with a solid three-century history of staying put in chilly soil. My wifes ancestors were from Newfoundland and Ireland, cold seacoasts and autumnal skies. As kids, we both made the long drive to Maine in the summersin my case to the coastline where my grandparents lived and my uncle and cousins worked as lobstermen, in her case to a Girl Scout camp way up in the North Woods, cabins speckling the shores of a deep-blue lake under the shadow of Katahdin, the highest mountain in the state.

So living in the humid marshland of Washington, D.C., where we ended up together and married in our twenties, always felt like a mistake. The Mid-Atlantic was almost like the Northeast, but just slightly different in its temperature and color schemesmore sweltering in the summer and less vivid in the fall, with more winter rain and June warmth than our remembered childhood worlds. I would have preferred a stark contrast, the prairie or the Rockies or the Californian chaparral. Instead the resemblance just reinforced our mutual homesickness for deep woods and colonial houses, birches and evergreens, old stone walls and blizzards.

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