To my dad, Joseph P. Davock, who always inspired me by reading and surrounding us with books to read. To Jim Cline, who believed from the beginning that I could write this book. To my children, Joe, Carter, Sam, and Harry, who probably cant wait for me to be done talking about writing this book!
I also dedicate this book to my friend, Melanie St. Croix, and her willingness to share her story of life with ALS. You inspire and remind me every day of what it means to live a life filled with love.
And to my friend, Terry OConnor, who has shown unbelievable strength and knows what it means to have the love and encouragement of family and friends. You have been there for me in good times and bad, and your unwavering friendship means so much to me.
Acknowledgements
While writing this book, I had the support of so many colleagues, friends, and family. I couldnt have done it without you! I will be forever grateful as I tackled a topic that has been in my mind for the last six years. Your feedback and your contributions helped me achieve my goal. Thank you for inspiring my drive, which gave me the confidence that helped make this book a reality.
Special thanks to my beta readers, Allison Cline, Jim Cline, Joan Crooker, Louise Durand, Karen Hvizda, and Belinda Juran. Your thoughtful suggestions and editing were so helpful, and you kept me going through the journey.
I am so appreciative of the opportunity to interview people, who willingly gave their time and shared their knowledge. This book couldnt have happened without you!
Richard Blain
Lorna Boucher
Angel Brunelle
Julia Campbell
Elizabeth Cannon
Brian Frederick
Colleen Gordon
David Hall
Ron Hoffman
Teresa Jardon
Eva Montibello
Carrie Munk
LZ Nunn
Spencer Ross
Mark Yim
Thank you to a wonderful group of supporters who helped me ensure this book would happen. Your belief that I would actually get this written drove me on some of the hardest days. I will always be grateful for your encouragement.
Lisa Armstrong
Eileen Augustus
Mary Barrett
Michael Beers
Chris Bendann
Rick Blain
Ruth Boehl
Holly Butler
James Canning
Erin Caples
Sandra Carriker
Laura Christianson
Annie Ciaraldi
Michael Ciuchta
Tina Clement
Allison Cline
Jim Cline
John Cline
Michelle Costello
Allison Cree
Joan Crooker
Joanne & Adam Dunbar
Marijane Davock
Jon deAlderete
Joanna DelMonico
Louise Durand
Jim Dyment
Amy Erickson
John Feudo
Joe Finch
Sam Finch
Harry Finch
Tawnya Finkel
Megan Foster
John Geraci
Gianna Geraci
Bob Gilman
Carolyn Gregoire
Lisa Gwaizda
Judy Haley
David Hall
Karen Hvizda
Collette Joliffe
Ralph Jordan
Belinda Juran
Karen Kane
Sal Kapadia
Erin Keaney
Jim Keenan
Eric Koester
Janet Lambert Moore
Matt Lawson
Diane Lefebvre
David Levine
Jennifer Linatsis
Bea Alice Loos
MaryRose Loring
Patrick Lotti
Ashwin Mehta
Tracy Moore
Joey Moore
Milissa Moynihan
Donna Mullin
Jenny Murphy
Margaret Murray
Rosemary Noon
Jean OBrien
Sharon ODonnell
Beth Patrick
Melissa & Stephen Pennell
Michael Penta
Joanne Pesnell
Ha Pho
Chris Porter
Sovanna Pouv
Karyn Puleo
Shaima Ragab
Andre Ragel
Mary Ellen Ramsey
Donna Richards
Diana Robarge
Jodi Robinson
Steven Rogers
Spencer Ross
Carter Sartell
Anne Sayers
Kelly Skelton
Allyssa St. Croix
Erica Steckler
Melinda Stewart
Li Sun
Sean Thibodeau
John Ting
Tatiana Tompkins
Robin Toof
Bethanne Welch
Amy Werner
Jim Wilde
Kevin Willett
Barbara Williams
Lance Williams
Martina Witts
Amy Woo
Christine Wyman
Yi Yang
Joanne Yestramski
Mark Yim
William Zousas
This book would not be possible without the creative development of the Creator Institute by Georgetown University professor Eric Koester, the help of New Degree Press, and the enthusiastic support of Head of Publishing Brian Bies. Allison Tovey and Sarah Lobrot, you offered guidance and patience in your role as editors, always knowing when to push just a little bit harder and offering plenty of praise along the way. I truly looked forward to our weekly meetings. Thank you all for this amazing experience.
Introduction
Do you remember the first time you saw someone dump a bucket of ice over their head on social media? They were probably taking part in the ALS Ice Bucket Challenge. Were you intrigued, shocked, or impressed? Think about how you felt when videos of people doing this began to appear. The idea of emptying a bucket of ice water over our heads was, no pun intended, shocking! Did you take the challenge?
In the summer of 2014, an organic movement began that would change the way nonprofits look at social media as a tool for marketing: The ALS Ice Bucket Challenge. This created a call to action to pour a bucket of ice-cold water over your head to raise awareness and funds for research and care of people with ALS. The ALS Ice Bucket Challenge went viral on social media, and millions of people took part in this experience! Each participant was asked to nominate three people to take the challenge.
The Ice Bucket Challenge was the first time many people globally learned about ALS, also known as Lou Gehrigs disease, and the fight to find viable treatments and a cure. If you didnt accept the challenge, you were supposed to donate one hundred dollars to ALS research. It was an incredible success: In the summer of 2014, the ALS Ice Bucket Challenge inspired 17 million people to upload videos and raised $115 million for the ALS Association.
It was a wake-up call to the world and a transformative moment for nonprofits. No longer could social media be relegated to well get to it when we can; rather, it became a new way to tell the stories and missions of so many causes. In an interview with David Hall, currently associate vice president of external relations at Greater Lawrence Family Health Center located in Lawrence, Massachusetts, he said, I dont think we did much on social media before the Ice Bucket Challenge. The Challenge really helped people to start thinking about how they could do social media fundraising, and how companies could utilize it for social good. Hall, with a strong background in fundraising, noted that the executive team at Lowell General Hospital in Lowell, Massachusetts had taken the ALS Ice Bucket Challenge that summer and encouraged LGH employees, along with other health care businesses, to take up the challenge. Hall remembers the natural connection of ALS with the hospital and how excited people were to participate.