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Connie Brill is a graphic illustrator and painter who resides in Northern California. She has worked with Dr. Betty Ferrell and colleagues at the City of Hope to illustrate the messages from patients and families regarding pain, quality of life, and suffering. For the past ten years, Connie has worked with various corporations and individuals to create diverse graphic illustrations for numerous projects.
Page iii
Suffering
Betty Rolling Ferrell, PhD, RN, FAAN City of Hope National Medical Center Duarte, California
Jones and Bartlett Publishers Sudbury, Massachusetts Boston London Singapore
Page iv
Editorial, Sales, and Customer Service Offices Jones and Bartlett Publishers 40 Tall Pine Drive Sudbury, MA 01776 1-508-443-5000 1-800-832-0034
Jones and Bartlett Publishers International 7 Melrose Terrace London W6 7RL England
Copyright 1996 by The Oncology Nursing Society
All rights reserved. No part of the material protected by this copyright notice may be reproduced or utilized in any form, electronic or mechanical, includ ing photocopying, recording, or by any information storage and retrieval sys tem, without written permission from the copyright owner.
Library of Congress Cataloging-in-Publication Data Suffering / [edited by] Betty Rolling Ferrell. p. cm. Includes bibliographical references and index. ISBN 0-86720-723-X 1. SickPsychology. 2. Suffering. 3. Pain. 4. Stress (Psychology) I. Ferrell, Betty. [DNLM: 1. Stress, Psychological. 2. Painpsychology. 3. Diseasepsychology. 4. Professional-Patient Relations. WM 172 S9448 1996] R726.5.S825 1996 155.9dc20 DNLM/DLC for Library of Congress 95-544 CIP
Credits
Acquisitions Editor: Jan Wall
Manufacturing Buyer: Dana L. Cerrito
Design: Pat Torelli, Solar Script, Inc.
Editorial Production Service: Solar Script, Inc.
Illustrations: Asterisk Group, Inc.
Typesetting: Kachina Typesetting, Inc.
Cover Design: Hannus Design Associates
Printing and Binding: Braun-Brumfield, Inc.
Cover Printing: Henry N. Sawyer Co., Inc.
Cover Artist: Connie Breel
Printed in the United States of America
99 98 97 96 95 10 9 8 7 6 5 4 3 2 1
Page v
CONTENTS
Foreword
Jeanne Quint Benoliel
vii
Part One The Experience of Suffering
1
1 An Understanding of Suffering Grounded in Clinical Practice and Research
David L. Kahn, PhD, RN, and Richard H. Steeves, PhD, RN, FAAN
3
2 Suffering in the First Person: Glimpses of Suffering through Patients' and Family Narratives
Nessa Coyle, RN, MS
29
Part Two Suffering in Special Contexts
65
3 The Suffering of Children and Their Families
Barbara S. Shapiro, MD
67
4 HIV/AIDS and Suffering
Judith M. Saunders, RN, DNSc, FAAN
95
5 Suffering and Survivorship
Mel Haberman, PhD, RN, FAAN
121
Part Three Professional Perspectives
141
6 Physician's Perspective on Suffering
Robert Dunlop, MD
143
Page vi
7 Theological Perspectives
Father Robert Smith
159
8 Coaching and Suffering: The Role of the Nurse in Helping People Facing Illness
Judith A. Spross, PhD (cand.), RN, OCN, FAAN
173
Part Four Humanizing the Experience of Pain and Illness
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