Caring for Parents and Other Loved Ones
A Guide for the 21st Century
WILSON SIMMONS III
Mae Jacquet Publishing
Los Angeles, CA
Copyright 2015 by Wilson Simmons III
Mae Jacquet Publishing
PO Box 5187
San Pedro, CA 90734
www.wilsonsimmonsiii.com
All rights reserved. No part of this book may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording or by any information storage and retrieval system, without written permission from the publisher, except for the inclusion of brief quotations in a review.
ISBN: 978-0-9772557-1-9 / Hardcover
ISBN: 978-0-9772557-2-6 / Paperback
ISBN: 978-0-9772557-3-3 / Ebooks
Library of Congress Control Number: 2014918796
Printed and bound in the United States of America
Book design by Dotti Albertine
Dedicated to the memory of
Cecellia Jean Simmons
CONTENTS
FOREWORD
I begin the Foreword to this remarkable book by thanking the spirit of Wilson Simmons IIIs mother, Mary Jacquet Simmons, for cultivating within him the quality of unconditional love, the compassion of a Buddhas heart, and the courage of a spiritual warrior. Caressed as it is with wisdom and practicality, Wilsons journey is very personal to me where the precious memory of my own beloved mother, Alice G. Beckwith, is concerned. As well, for some years now Ive watched my wife, Rickie Byars Beckwith, care for her dear mother, Doris Byars, with tireless love and compassion amidst challenging circumstances. It is from direct experience that I say regardless of whether you are caretaking a loved one, if you are sharing the responsibility with other family members, if your loved one is in a care facility, or if you are reading this book on your own behalf, you will find in these pages the full spectrum of how you may skillfully navigate the position in which you find yourself and/or them.
First and foremost, it should be understood that this book is not only for a time of imminent crisis where we or a loved one are concerned. In our Western society where aging, illness, the process of dying and death itself are, in general, related to with a denial mentality, a book like Caring for our Parents and Other Loved Ones is vital to our life-education. Simmons guidance addresses many vital issues such as shifts in physical prowess, senior driving skills, discerning mental skills, along with holistic approaches to the countless details in caring for an elderly, ill, or dying loved one. And with the utmost respect and love, he includes the spiritual aspects of this intimate and profound journey that awaits us all.
From the birth of the hospice movement in 1948 by physician Dame Cicely Saunders, who began her work with the terminally ill in a suburb of London at St. Christophers Hospice, to 1972 when Dr. Elisabeth Kubler-Ross presented to the world her classic bestseller, On Death and Dying, encouraging progress has been made. As Kubler-Ross wrote, We live in a very particular death-denying society. We isolate both the dying and the old, and it serves a purpose. They are reminders of our own mortality. As we celebrate 40 years of hospice care in the US and a healthy shift in our long-held attitudes and practices, the book you hold in your hands is a most valuable resource. Simmons gives us all new eyes with which to view and relate to what living has to do with dying, and what dying has to do with living.
Whether you are the patient, a loved one, the caregiver or both, this book offers the encouragement, trust, compassion, solace, and skillful means to walk the path with confidence. It is a gift to us all, and I highly encourage you to share it with family members, friends, and any caregivers you know.
Michael Bernard Beckwith
Author of Life Visioning
Founder, Agape International Spiritual Center
ACKNOWLEDGMENTS
Special gratitude and love to my two ANGELS: Eboni Simret Wright and Sarah Presley. It is easy to see why God sent you to help me, guide me on the journey, lift me when I fall, and nudge me when I need it most.
I am grateful to my family and friends who have shared personal experiences, encouraged me, and lifted my spirits. Thank you: Judge Dixon, Donna King, Saman Wright, Joe Louis, Leann Niess, Sydney M. Lee, Larry Williams, Lloyd Ferguson, Calvin Sweeney, Clinton Woods, Harold Logwood, Anzecus, Omega Psi Phi Fraternity, Delta Sigma Theta Sorority, Maya Zuri Louis, Mary J. Goodbeer, Sabine Fimbres, Siri Vhed Khalsa, Rose LaFrance, Melvin Bell, Bertram Bell and Chickee Nelson.
INTRODUCTION
There are only four kinds of people in this world: those who have been caregivers, those who currently are caregivers, those who will be caregivers, and those who will need caregivers.
ROSALYN CARTER, former First Lady, wife of President Jimmy Carter
THIS BOOK WILL empower senior citizens and their caregivers by bringing a bright light, as well as viable solutions, to a condition in our society that has been cast into a dark corner. Healthcare for seniors in the United States is encumbered by bureaucracy, apathetic policymakers, a corrupt Medicare/Medicaid system, and hospital conglomerates designed almost exclusively for profit. To date, these systems and our government are doing a poor job of serving the very people who built this country: hardworking people who believed their twilight years would mean lying in a hammock sipping cold lemonade. Instead, they are finding themselves being treated with disrespect and, in many cases, tied down to beds or wheelchairs and treated with disdain.
Many of our senior citizens feel as if they have been cast aside like yesterdays trash. Can it be that the very system to which we have been paying our share of Social Security and taxes is now earmarking those hard-earned funds for war, and worse, for bailing out the rich, good ole boys on Wall Street, most of whom will never have to worry about healthcare or a place to live?
Seniors represent a very powerful force in modern society and our numbers continue to grow. In fact, someone turns 50 every seven seconds, and the senior population is expected to increase to more than 70 million by the year 2030. We have a responsibility to each other. Rosalyn Carter, former First Lady and wife of President Jimmy Carter, said it best: There are only four kinds of people in this world: those who have been caregivers, those who currently are caregivers, those who will be caregivers, and those who will need caregivers. That pretty much includes all of us.
Based on studies done over the past two decades, 75% of caregivers are women, yet in the last five years, more and more men are becoming involved in caring for aging parents and loved ones. More than 55% of the caregivers in the 1988 Pines Burnout Measure (BM) Study said that they were experiencing burnout, and 85% complained of just being plain exhausted. Caregiver by definition means you are going to be exhausted in the best of circumstances. The life of a caregiver becomes a marathon of tasks, hopes, and disappointments. Added to that are family members who may find fault in everything the caregiver does.
I had the honor of caring for my mother, Mary Jacquet Simmons, for the last five years of her life. As a caregiver, I covered the range of emotionsresentment, irritation, confusion, disappointment, bitterness, discontent, and distressmost of which had little to do with the actual care.
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